machshefa: (tree pose)
[personal profile] machshefa
Hi everybody.

I just got off the phone with Miss T. 

She said that she is overwhelmed (in a good way) by the incredible support she is receiving and is so appreciative of the response. Those of you who know how to contact her via phone are welcome to do so, and she, (to quote) is "welcome to not pick up the phone" if she's not feeling up to talking. She's doing a lot of dozing and said she knows that nobody will take it personally if she's not up for a conversation. :)

Also, something her husband told me last night was clarified in my conversation with her today and it's wonderful and important. 

I mentioned in my prior post that the neurosurgeon said that there was a tremendous amount of pressure in the brain from the tumor. This pressure was exacerbated by the changes in cabin pressure, but the tumor was causing most of it and it was extreme. The surgery relieved most if not all of that pressure.

So.

Had T not come to Chicago, experienced changes in cabin pressure which ultimately caused the seizure which led to this diagnosis, the neurosurgeon told her that the tumor would have caused overwhelming pressure in the brain within about four weeks. According to the doctor, that pressure would likely have killed her. As she said, it could well have happened while she was driving... *shudders at the thought

She is so very grateful that she came to Chicago and so are we all.

T and I agree. Fangurlistan saves lives!

Also, she said that she cannot read (don't know if that's permanent or not), so let's get going on those podcasts! She's excited for them. 

Thanks to all of you for the tremendous response to this news, for the good wishes and positive energy you all are sending her way. This is such a wonderful community.

Date: 2011-07-19 09:14 pm (UTC)
From: [identity profile] timestep.livejournal.com
Can you email me offline? I have an idea.

timestep05@yahoo.com

Date: 2011-07-19 10:05 pm (UTC)
From: [identity profile] elise-wanderer.livejournal.com

Bless you and PJ for keeping us all informed (and for your wise, wise words in how to deal with this devastating situation). Fangurlistan ROCKS because it has the most wonderful people in it---including you, my dear!

*squishes you tightly*

Date: 2011-07-19 11:19 pm (UTC)
From: [identity profile] beffeysue.livejournal.com
I want to second what [livejournal.com profile] elise_wanderer said. Thank you for letting all of us know how Miss T is doing, and how we can best be there for her and her Mr. I'm not on her flist, but I've enjoyed her comments on other's posts and reading her reviews. So... just thank you.

Date: 2011-07-19 11:21 pm (UTC)
From: [identity profile] owlbait.livejournal.com
My own works are entirely lacking in HGSS (at least till my exchange fic posts) but I'll happily record a reading of someone else's. Let me know - owlbait at gmail.

Date: 2011-07-20 12:32 am (UTC)
From: [identity profile] blueartemis07.livejournal.com
If she likes any of my fics, anyone is more than welcome to record them for her. And thank you so much for updating us.

Date: 2011-07-20 12:48 am (UTC)
From: [identity profile] aurette.livejournal.com
This is awesome news! Thank you so much for keeping us posted! All hail Fangurlistan!

Date: 2011-07-20 01:00 am (UTC)
From: [identity profile] averygoodun.livejournal.com
I've been praying for her and her family ever since I saw the news, even if this weird internet didn't allow me to post my good wishes right away.

Thank you for the updates, and yay for Fangurlistan!

Date: 2011-07-20 02:01 am (UTC)
From: [identity profile] kyriaofdelphi.livejournal.com
I will keep candles going along with prayers. Having been through cancer surgery in the last year, I can relate. Give her my best and tell her I know she is strong. Hugs to all of you who are doing so much.

Date: 2011-07-20 04:55 am (UTC)
From: [identity profile] teddyradiator.livejournal.com
All my thoughts are with her. Tell her I should have a bevy of recordings for her in the next couple of days. Loads of SS/HG writers have given me permission to record their fics for T, and as soon as I can figure out how to get them available, they're all hers.

Date: 2011-07-20 06:03 am (UTC)
From: [identity profile] duchessjules.livejournal.com
I have a good speaking voice. Clear and dramatic. (lawyer) I want to help in any small way I can.

Date: 2011-07-20 01:04 pm (UTC)
From: [identity profile] machshefa.livejournal.com
Thank you! We have a community set up for the podfic reading called smokingbaby. We're all still getting organized, but head on over there and more information should be forthcoming. T did make a specific request for two of my fic... one of them is getting taken care of, I think, but maybe you'd be interested in reading the second? *hopes

Email me if you like at machshefa at gmail dot com.

And thank you!

Date: 2011-07-20 07:10 am (UTC)
From: [identity profile] junewilliams7.livejournal.com
Thank you for the update! Next time you speak with T, would you please consider asking her for ideas on how we can support her husband? He's going to be her primary caregiver and on-site encourager; from personal experience, I know that can be emotionally exhausting (yet also an honor and privilege). I dunno, maybe he has his own HP fics he'd like on Podcast.

Date: 2011-07-20 01:07 pm (UTC)
From: [identity profile] machshefa.livejournal.com
*hugs you

I haven't had a chance to respond to the comments on the first post and noticed your concern for her husband there, too. You are wise, my dear. And, yes, we are attentive to Mr Mis_T... I have a bunch of resources to offer him/them when I see them next. I spent some time on the phone with him Monday night, and I'm sure there are some things we can do to support him. If you have some specific suggestions that you think this community could offer, please let me know (machshefa1 at gmail dot com). He's not an HP fan, but I'm sure that in our support of T, he feels some support, too (since it helps her). I think he's still (understandably) figuring a whole lot of things out.

*hugs you

Date: 2011-07-20 04:26 pm (UTC)
ext_35366: (Default)
From: [identity profile] alabastard.livejournal.com
Healing thoughts continuing from Malfoy Manor...

Date: 2011-07-21 03:25 am (UTC)
From: [identity profile] shellsnapeluver.livejournal.com
This gives me chills. I HATE flying, but for once, I am so greatful for the darn planes because of the cabin pressure.

Wow. Stunned.

Thank you for the updates!

Date: 2011-07-21 11:59 am (UTC)
From: [identity profile] blackeyedlily.livejournal.com
I'm just catching up on all of this. I've told [livejournal.com profile] lady_karelia that I want to be involved in the fan fic podcasting. I'm having surgery on Aug. 3 and am way behind on my Exchange Fic, but beyond taking care of these priorities I'd really like to be involved in helping create some permanent type of podcast fanfic library. I'm sure many would benefit. It could be in honor of Ms. t's getting us on the ball with such a thing. So please keep me in mind to help and in the loop of any such effort, even if my active involvement might have to wait until mid-August,
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